Empowering Families

Support for Infants with Epilepsy

Join us in creating hope and providing compassion, comfort and resources for families affected by Infantile Spasms (West Syndrome) in our supportive community. We aim to raise awareness about Infantile Spasms (West Syndrome) and therefore reduce diagnostic and treatment delays to promote early intervention and improve outcomes.

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Families Supported

Donations to Hospitals

Education Distributed

Community Events

About Us

Our Journey: Supporting Families facing Infantile Spasms (West Syndrome) together

Tykes with Spikes is a non-profit organization dedicated to supporting families impacted by this form of infantile epilepsy through resources, community, and education.

Our Services

Compassionate Support and Resources

Explore our range of resources designed to empower families and foster community connection.

Family Support

Guidance to help families cope with a new diagnosis and provide an open community.

Educational Material

Engaging information on early diagnosis and options for management of Infantile Spasms.

Community Connections

Building networks to create inclusive communities for families. Options to participate in an event and make connections to build your community.

Join Our Fight Against Infantile Spasms

Support our mission by getting involved with Tykes with Spikes today.

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Why Choose Us

Unique Support for Families Impacted by Infantile Spasms (West Syndrome)

Community

We foster inclusive communities where families can connect, share, and support one another through shared experiences and understanding.

Education

Our educational resources empower families and caregivers with vital information about Infantile Spasms, treatments, and coping strategies to navigate everyday challenges.

Compassion

We approach every family with compassion, offering support assistance during difficult times and advocating for their unique needs.

Awareness

We actively work to raise awareness about Infantile Spasms and promote understanding in the broader community to minimize diagnosis and treatment delays.

Our Approach

How We Support Families through Effective Processes

Connect

We connect families to one another to empower them to share
experiences and support through our community events and online platforms.

Educate

We provide educational material and resources for caregivers and healthcare providers to better understand Infantile Spasms to minimize delays in diagnosis and improve outcomes. Educate families about coping strategies, and ways to develop a strong support system.

Support

Our dedicated team offers compassionate support tailored to
each family’s unique journey with Infantile spasms, ensuring they never face it alone. We donate comfort items to infants and their families who are undergoing diagnosis, testing and treatment.

Words from Our Families

Tykes With Spikes will be a guiding light during some of life’s toughest moments. Their resources and community support strive to make a difference in so may individual’s journeys.

The programs and support from Tykes With Spikes aim to transform our understanding of epilepsy and connect amazing families who truly understand.

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Join Our Mission to Support Families

For every 100 visits to this website, a bundle of 10 handmade sensory blankets will be distributed to a NAEC (National Association of Epilepsy Center) Hospital where infants undergo testing (imaging, EEGs and lab testing) for Infantile Spasms. Additionally, 10 unique journals will be donated as well for caregivers to track feelings, ideas and medical note and questions.

Take action now and help us make a lasting impact on the lives of children affected by epilepsy.

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