An Unassuming Name for an Unusually Cruel Condition – Owen’s Story

The inspiration behind Tykes with Spikes is my son, Owen. Born in April 2024, Owen was a healthy baby—aside from a few minor findings like an enlarged kidney and a single palmar crease, which genetics deemed non-issues. We were told to follow up only if developmental concerns arose. Owen thrived in his first months—he loved music, food, swimming, and stroller runs. But around nine months old, subtle and sudden jerking movements began, mostly upon waking. They seemed mild at first, […]

An Unassuming Name for an Unusually Cruel Condition – Owen’s Story Read More »