Support
Raising Awareness and Empowering Families Affected by Infantile Spasms
01
Family Support
Providing families with the resources and emotional support they need to navigate the challenges of infantile spasms and epilepsies of infancy.
02
Educational Material
Enabling caregivers, healthcare providers and families to better understand epilepsy of infancy, and raise awareness through distribution of education to healthcare, and educational settings promoting early intervention and improving outcomes.
03
Community Connections and Events
Encourage family engagement through joining us for connection events and support groups, fostering a nurturing environment where families affected by epilepsy of infancy feel valued and understood.
04
Advocacy Initiatives
Many organizations aim to raise awareness, influence policy changes, and promote research funding for Infantile Spasms and other forms of childhood epilepsy, ultimately working towards better healthcare solutions for affected families. Please consider visiting their sites and donating if you are interested.
Get Involved Today
Join Our Mission to Support Families
For every 100 visits to this website, a bundle of 10 handmade sensory blankets will be distributed to a NAEC (National Association of Epilepsy Center) Hospital where infants undergo testing (imaging, EEGs and lab testing) for Infantile Spasms. Additionally, 10 unique journals will be donated as well for caregivers to track feelings, ideas and medical note and questions.
Take action now and help us make a lasting impact on the lives of children affected by epilepsy.