Education

What are Infantile Spasms?

Infantile spasms, also known as West syndrome, are a rare but serious type of epilepsy that typically begins in infants under 1 year old. They involve sudden, brief muscle contractions—often described as head nodding or jerking movements—that can occur in clusters. These seizures are often subtle but may signal significant underlying brain issues.

Early diagnosis and treatment are critical. Treatments may include corticosteroids like ACTH or vigabatrin, depending on the cause. The outlook varies: some children respond well to treatment and develop typically, while others may experience ongoing seizures or developmental delays, especially if treatment is delayed or if there’s an underlying neurological disorder.

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For every 100 visits to this website, a bundle of 10 handmade sensory blankets will be distributed to a NAEC (National Association of Epilepsy Center) Hospital where infants undergo testing (imaging, EEGs and lab testing) for Infantile Spasms. Additionally, 10 unique journals will be donated as well for caregivers to track feelings, ideas and medical note and questions.

Take action now and help us make a lasting impact on the lives of children affected by epilepsy.

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